Thirty five years later I came across the article my dad wrote when going through a box of my mom’s things looking for things to make a scrap book for her 60th birthday. And now I want to continue the story.
My parents did not have continual sunshine after that. They had 7 more children, 5 girls and 2 boys after me. I have 4 mentally challenged sisters and my very youngest brother was like my 2 older brothers.
As a child I did not realize anything was different about my sisters until they started attending school. They were unable to function in a normal classroom setting. At the time we a had a lady living with us who took an interest in the education of my sisters. She became the special ed teacher for them for several years. She taught 3 of them how to read & write. After she quit teaching all 4 of my sisters were enrolled in a Special ed class at the local public school.
One Sunday afternoon when I was around 11 years old my parents called my brother, my sister next to me and myself into the bedroom and told us we were going to have another brother or sister. We were very excited about this and could hardly wait for the new baby.
On Feb. 3, 1981 my youngest brother Rodney Dale was born. We were excited about a baby boy in the family. One of my first memories is getting down on my knees beside my bed at night begging , and imploring to God that Rodney would be normal.
I do not remember the Sunday we had baby visitors. But at 3 weeks old my mom was changing Rodney and he had a seizure. My mom was heart broken. She kept the seizure to herself until the company left. That following week Rodney was taken to the doctor. Then the journey of hospital stays began. We children often went to other families in the church after school until our parents came home from the hospital to pick us up. Sometimes we children had no warning and were picked up by someone else because Rodney was admitted to the hospital again.
One of the ways that I helped my mom care for Rodney was to feed him the bottle. He was a very slow drinker so it took a long time. After school my sisters and I would gather all our dolls together and line up our chairs in a row and play church. This is when I held Rodney and gave him a bottle.
As a child I often wondered why us and felt that we were different. I also had to deal with the curious looks and questions as some inquisitive child asked their mommy what was wrong with those two boys as my parents carried there two handicapped boys into the nursery at church.
In the fall of ‘83 Rodney developed pneumonia and was admitted to the hospital. The night that Rodney passed away my mom was at home in bed with a severe headache. My dad was with him when they took the respirator off and he died 3 hours later.
This was a very sad time for our family. My mom’s work load was relieved slightly but she still had her second oldest son to take care of. I was 13 and was able to help care for Keith somewhat. I was able to hold him and feed him his meals.
After Rodney’s funeral my parents decided to visit their friends in Parry Sound. So one freezing rain Sun. Morning we started creeping up to Parry Sound. Several times we almost turned around but we begged dad to keep going. The weather finally cleared a bit and we made it to church. This was a very enjoyable weekend sharing with friends.
As we look back now that trip was a blessing because we focused on something else other than our loss. Because the following Sat. morning my parents woke up to hear nothing. They could not hear Keith breathing. He had passed away in his sleep 3 weeks after Rodney did. He was 14 years old. So we laid another brother to rest. Now my mom had break in caring for handicapped sons. She told me she washed diapers for 15 years.
Caring for these handicapped boys was hard physical work. They did not respond to any stimuli. They were either in bed or in wheelchairs.
Caring for my sisters is a little different. They are physically able to care for themselves. They do not have the cognitive skills that a normal functioning adult does.
As a teenager I struggled with meeting the needs of my sisters, yet having my needs met. I wanted them to be accepted as part of the group yet sometimes I was embarrassed that they were my sisters. I longed to have a sister I could have heart to heart chats with like my friends. My second youngest sister, who is 8 years younger than me is now my heart -to -heart sister. She was blessed with perfect health too. She is married, has a family, and is serving the Lord in Africa.
When I attended Bible School one winter I was given the assignment of explaining how my childhood shaped my life. This was an easy assignment for me. I remember discussing this assignment with another individual who was frustrated with that assignment. I said, just tell about your childhood and then proceeded to explain my point my telling my story. This only frustrated this person more. "See, nothing like that happened to me. My life was normal." That discussion has stuck with me because it showed me that my life was different then most people and yet it was normal for me.
My 4 sisters have all graduated from the Life skills program at high school. They all hold jobs in the community. About 4 years ago they went together and purchased a house. They have a measure of independence. Two of them own a car.
While they have their independence it still takes tremendous patience, grace and mercy on our part as a family.
The issue I struggle the most with in relating to my sisters is taking the time to listen.
It means answering the phone at inconvenient times to assure them or answer a question, having them pop in without notice to show you something they bought when it really does not work to have them there. I found this particularly challenging when I am looking after my own two little boys. They need my attention and yet the girls were demanding my attention.
It seems rude and unkind but at times we just have to say now is not a good time. We will have to talk about this later or something of that nature.
I did not know until the day of my wedding when my dad was giving his father of the bride speech that my parents had anointing of oil when they were expecting me.
Since then a verse and a phrase go through my mind, there but for the grace (and mercy) of God go I and unto whom much is given much is required. Luke 12:48 These are the two things I try to live by when I am challenged by the emotional issues I face when I am with my sisters.
Often if we just take the time to stop and listen to hear what the mentally challenged have to say or show they will be satisfied. A relationship with a mentally challenged person is often nurturing, giving but not receiving. This is where it is vital for we as care givers to have friends who can give us the encouragement we need to have the stamina to face the next situation.
When I am tempted to cut my sisters off because I think I don’t have time for this right now I have to think how would I feel if was treated like that. What if God had blessed my sister with a sound mind and I was like her, would I want to be treated like that?
Some rewards, blessings of having mentally and physically challenged individuals in your family is it makes you sensitive to the needs around you and other handicapped people. You develop empathy. You are kept humble! Nobody is a stranger and nothing is kept private. Another blessing you receive is the unconditional love they lavish on you.
I think the biggest gift you can give a mentally challenged person is the gift of your undivided time and attention. Some ways you can do that are taking time to talk to them when you meet them, remembering them on their birthday, inviting them into your home for a meal. These are all things we enjoy but it takes special effort to do this with the mentally challenged.
My mom does a very good job of this. She always answers the phone cheerfully. She usually has them at her place for Sun. dinner and is often helping them with something at their house. I admire my parents for fulfilling the role God has called them to. I feel they have faithfully followed God’s purpose for their lives. They have also done it with acceptance and thanksgiving.